November 18, 2008

Tennis Week Main - tennisweek - 6:26 pm

Last Laugh

The ridiculous racquet work and audacious angles Novak Djokovic produced in the opening set of Sunday’s 6-1, 7-5, dissection Nikolay Davydenko in the Tennis Masters Cup Shanghai final made the smiling Serbian resemble a showman intent on turning the fifth-seeded Russian into his own personal punch line.  (more…)

November 14, 2008

Tennis Week Main - tennisweek - 5:28 pm

Happy History?

The Davis Cup final looms large on Argentina’s sports landscape and David Nalbandian isn’t exactly trying to downsize the magnitude of the final.

Mar del Plata, the sea-side city known as the “the happy city”, is the host site for Argentina’s November 21-23 final against Spain and Nalbandian hopes to create a happy and historic ending for Argentina. (more…)

November 12, 2008

Tennis Week Main - tennisweek - 6:09 pm

Venus’ Clef Duet

Venus Williams will reverberate in surround sound Thursday night.

Days after she reigned as Queen of Qatar in claiming her first career season-ending Sony Ericsson Championships title, Venus returns to television with a notable partner — Fugees founder and hip-hop star Wyclef. (more…)

November 10, 2008

Tennis Week Main - tennisweek - 6:18 pm

Cup Half Empty

 The Davis Cup final was a big screen event in Portland last December as the USTA hosted free public viewing parties on billboard-sized video screens around Portland, but this month’s final has already been downsized dramatically with the departure of Rafael Nadal. (more…)

October 30, 2008

Tennis Week Main - tennisweek - 4:56 pm

Tennis Lessons

“Absinthe makes the heart grow fonder,” I heard a friend, a long-time tennis coach, whisper wistfully.

Before I could fully ponder the possibilities of absinthe as an emotional aphrodisiac, he removed the golf-ball sized wad of chewing gum from his mouth that I realized had garbled his words;what he actually said was ”absence makes the heart grow fonder….” (more…)

October 22, 2008

Tennis Week Main - tennisweek - 5:27 pm

Skin Care

The halo of  hair framed the bright face of the boy wearing the crocodile on his baby blue sweater and optimism in his eyes as he stood in the corner of the court and bounced the ball to his famous father. Then Erik Wilander watched as his father, Mats Wilander, turned back to the business at hand and delivered a serve to an awaiting John McEnroe.

Standing on the har-tru court of the Westchester Country Club in this Monday morning exhibition match 11-year-old Erik was right where he wanted to be — sharing the same space as his Hall of Fame father — while achingly reminded of precisely what he can’t be: a committed tennis player.

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Mats Wilander and son Erik

Erik watched his father’s footprints clutter the clay court knowing he can’t follow in those footsteps without paying a painful price.

 Erik Wilander suffers from a “mild” form of the skin disease Epidermolysis Bullosa (EB) which affects approximately two out of every 100,000 people in the United States. EB is a rare genetic disease characterized by the presence of extremely fragile skin and recurrent blisters, resulting from minor mechanical friction or trauma. Many people get blisters on their hands and feet from time to time following friction, friction that comes from the continued rubbing of skin against a hard object or surface. People with EB, however, get blisters much more easily and in much greater numbers. Severe EB wounds resemble serious burns — but EB injuries keep recurring and there is no cure for skin so sensitive that makes the simple act of a handshake, a hug or lacing up a pair of sneakers painful in the more severe cases of EB.

“It’s just horrible; it’s a horrible disease,” Mats Wilander said. “It’s very, very bad and very, very sad when you see these young kids who are adorable and starting out their lives suffering from it. And it’s such a small disease a lot of people aren’t aware.  If you have a bad case of it then it’s very, very hard to make it past 25. Basically, because of organ failure and because of all the pain medication they take and of course the possibility of skin cancer, it is very, very tough for kids with the most severe cases to live long lives and that’s a real tragedy.”

In an effort to reduce the recurrence of blisters Erik experiences, the Wilander family moved from Greenwich, Connecticut to Hailey, Idaho several years ago. The drier climate has helped Erik’s condition. Erik has a milder form of EB — “He’s not in danger of not living a full life, no he’s not in that type of danger,” his father says — but the limitations the disease places on his life are painfully clear to Mats, who describes his son as “an unbelievable sports talent.”

“It impacts his life every day; for his level (of the disease) it’s mild, but it’s not mild because there is an obstacle every day,” Mats says. “He wakes up and he cannot play three hours of tennis every day, which is what he wants to do, and if he does he cannot walk for two days. He can’t do the school outings when they go climbing and do outdoor activities. I mean he can, but then he cannot walk for two days afterward so that’s not mild to me. He cannot pursue his passion, basically, unless his passion is cooking or laying in bed maybe. But his passion at the moment is tennis and he can’t pursue it. That’s not mild; to me that’s heartbreaking. But every time you see his face he’s the happiest kid I’ve ever seen in my life.”

It’s a defiant joy in spite of daily pain.

When Erik was younger, Wilander and his wife Sonya, would conduct a necessary nightly ritual of shedding skin that created stinging suffering in their otherwise happy child as they sat down with  Erik and carefully cut away the painful blisters bursting from their boy’s feet.

Now  Erik — the third-youngest of four siblings in the Wilander family that includes 15-year-old daughter Emma (who also has a mild form of the disease), Karl, 14, and Oscar, 9 — cuts away his own blisters while learning to cope with the challenges the disease presents knowing that every choice he makes can come with very real and raw physical ramifications. 

“It doesn’t improve, but he learns how to deal with it so he learns to wear slippers, he learns when he goes to tennis tournaments he can only play mixed or maybe doubles,” Mats says. “He plays tennis tournaments sometimes and we have to pull him off the court. He doesn’t want to go off the court but he walks like this (mimes limping) and he says ‘I don’t want to quit’ and I say ‘Erik, you have to quit because you’re taking more than 25 seconds. You can’t take 40 seconds between points so the rules apply to you too you’re not a child who has any kind of benefits whatsover.’ So that’s the good thing he knows that and all the kids know he has a disadvantage, but he still (has the spirit): ‘Yes I have a disease, but screw you, I’m gonna kick your ass!’ He wants to play tournaments all the time but he can’t play tournaments.”

The simple act of running for the ball over the course of a match can cause enough blisters to prevent Erik from walking the next day.

“He knows the consequences. We always have to say ‘Erik you play two hours  of tennis today you cannot walk tomorrow!’ ” Mats says. “(He says) ‘I know that papa, I know that,’ but he wants to play anyway. ‘But, Erik if you play two hours a day you cannot walk tomorrow and I’m not carrying you. So that’s the hardest thing to say because as parents that’s the toughest thing: you always want to carry him and help him and soon he’s gonna be our size and I can’t carry him and he doesn’t want to be in a wheel chair. Now cuts his own blisters because he gets his own really bad water blisters and he’s learned to cut them himself. You learn how to deal with it.”

Wilander, McEnroe and Thomas Blake were among the pros who convened on the Westchester Country Club’s courts for the 10th annual Mats Wilander Celebrity Tennis And Golf Classic in Rye, N.Y., which included a tennis pro-am and exhibition, golf outing, cocktail reception and silent auction and a dinner. Wilander estimates “90 percent” of the participants in the event have come back every year. It’s those who can’t return — kids with the most severe cases of EB — that are heart-aching reminders of the gravity of the disease.

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David Graham, John McEnroe, Mats Wilander, Thomas Blake

All proceeds raised from the event benefit the Dystrophic Epidermolysis Bullosa Research Association of America, Inc., DebRA, a non-profit organization dedicated to finding a cure for Epidermolysis Bullosa. DebRA is the only national organization providing day to day services for people suffering from EB. Wilander’s annual event funds a substantial part of DebRA’s operating budget. For more information on the event or EB, please visit the DebRA web site or email Staff@Debra.org or phone the national office at (212) 868-1573.

 Some families can spend $20,000 a year more on bandages for a child suffering from the most severe case of EB. But how do you bandage broken dreams?

The most insidious and devastating aspect of the disease is there is no cure.

“Any cure is basically going to have to come through stem cell research,” Wilander says. “It’s one of these genetic-altering things so we’re basically hoping and waiting for the government to approve the stem cell [research]. This event raises awareness and the money we’ve raised is for bandages to support the families who have kids suffering from the disease and who have to basically spend $20,000 a year on bandages and treatment every year because insurance companies in America don’t cover the cost of bandages. So this is very important for us to raise money to help these kids and their families.”

 While DebRA does offer a “wound care clearinghouse” to help alleviate the cost of bandages for the EB community, funds raised are also applied to support the numerous programs and services offered by the organization including the Nurse Educator program, Family Crisis Fund, National Physician Referral Service, Biennial National Patient Care Conference and Research.

Wilander commemorates the 10th anniversary he’s adamant that the cult of celebrity that drives so many charity events does not touch this one and wonders why a Q-rating (or ATP ranking) sometimes seems necessary to compel us to do the right thing. It’s the kids, not the celebs, who are the face and focus of this event.

“What I’m proud of is this is our 10th anniversary here and we have survived without celebrities,” Mats says. “John McEnroe is here and he’s come year after year. But I can’t stand these charities where celebrities are everything where (people come to say) ‘I played golf with Mike Tyson or Huey Lewis and the News.’ It shouldn’t have to be like that — that’s complete bull shit. And I couldn’t believe before I put my name on this event there wasn’t an event. It’s so disappointing we have to do this because it means kids are still suffering.”

It’s a rally between hope and dread — hope that the money raised will lead to greater awareness and increased research to combat the disease, but dread that kids are still suffering. Ultimately, it’s these kids whose skin can be so sensitive to touch that the simple act of a hearfelt handshake or a hug can be a painful proposition that exert the most humane touch on their families.

“What I’ve learned from seeing Erik grow up and what his siblings have learned is such an invaluable lesson I would never trade it. I would never trade,” Mats says. “To me, it’s more positive than negative because the personality I see in him is so positive and the spirit is so pure and good. No life is not just. He knows that. I know that. You know that. Everyone knows that. But he feels that first hand. The smile and happiness on his face when he’s healthy is beyond anything. Of course everyone who has a kid with a disease will say the same thing but, now I’m living with it and I see it. People have a right to complain about little things for sure, but I don’t do it and I thank God and thank Erik.”

The blisters are physical reminders of broken skin that the son has learned to cut away every night before bed, but the famous father sees his young son’s spirit as unbreakable.

“I am a believer that bad things happen to good people because they can deal with it,” Mats says. “It happens to him because I think his spirit is so strong you can’t break it or you just learn to live with it. But if someone needs to have it, then give it to him. He’s the perfect kid. He can survive anything. He’s unbelievable, I must say, even though he’s my kid. He’s unbelievable”

mats-erik-wilander.jpg

October 17, 2008

Tennis Week Main - tennisweek - 2:32 pm

Fashion Face Off

High performance and high fashion can converge on court when Venus and Serena Williams come to play. The Slam sisters, who partnered to claim their second Olympic gold medal in doubles at the Beijing Olympic Games in August, faced off in their latest sisterly sequel in the US Open quarterfinals.

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(more…)

October 13, 2008

Tennis Week Main - tennisweek - 4:44 pm

Andre’s Grand Slam

His swings are largely confined to charity exhibition events these days, but Andre Agassi still knows how to put on a Grand Slam show. (more…)

October 8, 2008

Tennis Week Main - tennisweek - 5:29 pm

Marat’s Moments

Marat Safin can transform himself from a tormented tennis terminator to a whimsical warrior faster than a Dostoevsky character thrust into the center of a Dr. Seuss story.

He is the entertaining presence who once celebrated a winner by pulling down his shorts on court at the French Open because “it felt like the right thing to do”; a committed Davis Cup competitor who channeled his inner Mr. T in offering this ominous prediction of masochistic Moscow misery prior to Russia’s victory over the USA in the 2006 Davis Cup semifinals: “Someone has to suffer and it will not be us. That’s for sure”; and a sometime sensualist who showed up for the 2002 Australian Open final, which happened to fall on his 22nd birthday, accompanied by a group of beauties who looked like they could have come straight from the cast of Baywatch. Safin surprisingly lost the final to Thomas Johansson, but conceivably celebrated in style nonetheless. (more…)

September 29, 2008

Tennis Week Main - tennisweek - 5:09 pm

Justine Returns

It’s a small world after all and now Mickey Mouse has a notable new neighbor showing a sixth sense: Justine Henin.

The former World No. 1, who retired from tennis in May, long-time coach Carlos Rodriguez and Pat Etcheberry, her strength and conditioning coach, reconvened to officially launch the American branch of their 6th Sense Tennis Academy at Mission Inn Resort and Club just outside of Orlando, Florida on Saturday.

“I’ve had a lot of good memories, good emotions and good moments playing here in the States. So coming from a little country like Belgium to bring our Academy over here to the States is a very good, exciting and interesting challenge,” Henin told Tennis Week. “We hope to bring something different to tennis here — a different philosophy — and we want to remind kids that tennis is a game. Before you can become a professional, it’s got to be a passion and it’s gonna be a human adventure that we do all together so it’s going to be really, really exciting to be here.” (more…)

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